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Photo of White elementary school aged female smiling.

Izzy's Story

Izzy has neurofibromatosis, a condition that leads to unpredictable nerve tumor growth. She and her family traveled from California for a new therapy launched by Children’s National Hospital. Six years later, the therapy is still successful. "She's a really normal, average 10-year-old," says mom Alexis. "To have that normalcy is a great gift to us."

Photo of White elementary school aged female smiling.
Advances in our understanding of the brain and nervous system have led to a golden age of new opportunities to treat diseases in ways that were unimagined less than a decade ago. Philanthropy allows us to translate these discoveries into innovative therapies that will dramatically improve the lives of children and their families.

Roger Packer, MD

Director of both the Gilbert Family Neurofibromatosis Institute and the Brain Tumor Institute

Learn more about Roger Packer, MD